Marie Curie Research Voices Group Member

This is a great opportunity to play an important role in helping to improve the future provision and quality of end-of-life care. It is also a chance to learn about the research and policy work in the sector.

All you need to join is personal experience of living with terminal illness, caring for someone with a terminal illness or of bereavement.  

You’ll also be interested in supporting research in these areas.  We would welcome volunteers from diverse backgrounds and who have lived experience in the past few years.  As part of the group, volunteers will help the Research and Policy teams to better understand the views of people living with a terminal illness, supporting people who have a terminal illness or of bereavement and help inform Marie Curie’s decisions on research funding, dissemination and campaigning activities.

What we would like your help with

Your role will include some of, but is not restricted to, the following tasks. You will be able to choose what you get involved with and how.

• Providing your opinion on research proposals that we’re planning to fund

• Helping to identify key questions for palliative and end of life care research

• Advising on research projects, for example as a member of a research steering committee

• Talking about research at external events and conferences

• Helping our team to plan and facilitate key events and workshops

• Sharing your experience at policy-making forums, speaking at conferences or attending Government events

• Reviewing posters submitted for the Annual Marie Curie Palliative Care Research Conference

• Reviewing grant reports and offering feedback on findings and achievements to grant holders

• Being a member of a committee such as the Marie Curie Research Funding Committee

What skills or experience will be useful

• An interest in improving end-of-life care and in research and its evaluation

• Desire to understand and engage with national and local decision makers to drive changs

• Good communication and organisational skills

• Ability to read and comment on research summaries

• Confidence in taking part in discussions in a committee situation

• Respect for different opinions

• A willingness to take an active part in meetings

• To use your skills and experience gained through your professional or home life to support the work of the group

• Access to phone or internet would be particularly useful

Time commitment:  A suggested weekly time commitment is 4 hours, days and hours negotiable with the organisation.
Expenses reimbursed: Out of pocket expenses are reimbursed.
Training provided: Full training and induction is provided.  Also support and supervision.
Selection procedure: Informal discussion, application form completion and 2 references.
If you are interested in this opportunity, please contact us using the form below.